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    Invisible illnesses to be highlighted at ‘The Picture of Health’ exhibit, May 29

    A photography exhibit highlighting invisible illnesses will be unveiled on Wednesday, May 29 at The Healthcare Galley, 3488 Brentwood Drive, Suites 102 & 103, Baton Rouge. The Picture of Health exhibit is produced by Leslie D. Rose, a Baton Rouge based photographer and writer who suffers with fibromyalgia. The exhibit features more than one dozen Baton Rougeans representing illnesses such as multiple sclerosis, kidney disease, diabetes, sickle cell anemia, autism, psoriatic arthritis, high blood pressure, and more.

    Through the art of photography, The Picture of Health, shows people in the manner in which they present themselves daily. Using a mixture of head shots, full body shots, and shots of the individual’s hands holding up a sign detailing their illness, the exhibit focuses on the perceived normalcy of people housed in ill bodies. The mission is to highlight invisible illness, elicit compassion, and promote education on a variety of health issues. The Picture of Health  (4)_edit

    Inspired by her own diagnosis journey with invisible illness, Rose wanted to create something that would help non-ill people better understand what “sick” really looks like. In 2014, she was misdiagnosed with anxiety disorder. A diagnosis she believed as her husband had just been diagnosed with multiple sclerosis. After three years of trying to yoga and meditate the pain and fatigue away, she was hit with neuropathy so bad that she could not walk on her own for a full week. This began a yearlong second opinion process. During which, she began counseling sessions to cope with the unknown chronic pain and other associated symptoms, which was later revealed to be fibromyalgia. All of this has always been met with a huge lack of compassion, because rarely does she “look sick.”

    Being so closely touched by a variety of invisible illnesses and having been misdiagnosed, shining light on invisible illnesses of all kinds became a passion project for Rose. This is why she started an online support group for women of color suffering with chronic pain. But this wouldn’t be enough – she had to find a way to help other people understand invisible illnesses. At the top of September 2017, it was a simple Facebook post that asked people to comment with a selfie if they have invisible illnesses. Some 100 plus photos later, she knew the project in her head was much bigger than she could imagine, and so The Picture of Health was conceived.

    The one night only exhibit kickoff to be held on May 29 is sponsored by Rose’s activism-based arts organization, CreActiv, LLC, in partnership with Dr. Leone Elliott and The Healthcare Gallery. The exhibit is curated by April Baham. The event will run from 5:30 p.m. to 7:30 p.m. and will feature brief remarks from invisible illness warriors and medical professionals.

    ABOUT CreActiv, LLC

    CreActiv, LLC is an activism-based arts organization with the mission of promoting and producing programming that heightens awareness, raises funds, and/or supports important issues through the use of the arts and partnerships. The organization currently houses two programs Louisiana Artists for Puerto Rico and The Picture of Health.  Follow us on Facebook or Instagram@Picofhealthbr.

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    Standing Strong in Sickle Cell benefit concert scheduled for Feb 19

    Come lift a joyful noise for a wonderful cause! The Voices of Hope Gospel Singers of Baton Rouge are sponsoring a gospel concert benefiting the Baton Rouge Sickle Cell Anemia Foundation. The details for the concert are as follows:

    Voices of Hope Gospel Singers of Baton Rouge Present

    “Standing Strong in Sickle Cell”

    A Gospel Concert Honoring Families Affected by Sickle Cell Disease

    Nazarene Baptist Church

    1707 Spanish Town Road

    Baton Rouge, LA 70802

    Friday, Feb. 19, 2016

    7:00 pm

    2016 marks 42 YEARS of the Foundation’s service to 11 parishes in the state of Louisiana. BRSCAF is the only organization whose mission is to provide supportive medical and social services to people living with sickle cell disease in these parishes. We need your help to ensure client support.

    ONLINE: www.brscaf.org

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    Student organizations collect 200 drinks for BR Sickle Cell

    Southern University student organizations, Association of Women Students (AWS) in conjunction with the Alpha Tau Chapter of Delta Sigma Theta Sorority, Inc. held sports drink drive to benefit Baton Rouge Sickle Cell.

    To share the spirit of giving AWS and Delta Sigma Theta Sorority, Inc. rallied the Jaguar Nation together in support of sickle cell. The end result was collecting nearly two-hundred bottles of sports drinks. During this long event students flocked to the Smith-Brown Memorial Student Union Cotillion Ballroom to leave their contributions. The completion of the drive and the foundations recent participation in a health fair at the university is cultivating new ideas for future partnership.

    “I understand the importance of giving back especially during this time of year. I’m also familiar with the trials of the disease because I know someone who lives with it which contributed to the need for a successful drive. I look forward to helping Baton Rouge Sickle Cell more in the future,” said Harris.

    Sickle cell anemia is a genetic disease that affects red blood cells. It changes the cells from flexible disks into rigid crescents. Dehydration is a severe complication of sickle cell disease caused my loss of water in the body. Dehydration can create slow movement in blow flow causing a painful event for a person with sickle cell disease. The Baton Rouge Sickle Cell Anemia Foundation, Inc. is a 42-year-old non-profit that provides support and advocacy services to more than 600 individuals living with Sickle Cell Disease in 11 parishes.

    ONLINE: www.brscaf.org
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    Pictured from left to right: Zana Harris President AWS, Lorri Burgess Executive Director Baton Rouge Sickle Cell, Sarah Thanni Vice-President AWS and Dorlissia Robinson Secretary AWS.

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